About PANHEMATIN

PANHEMATIN® is a hemin for injection prescription medication used to relieve repeated attacks of AIP related to the menstrual cycle in affected women, after initial carbohydrate therapy is known or suspected to be inadequate.

How does PANHEMATIN work to treat acute AIP attacks?

The goal of treatment with PANHEMATIN is to reduce the produc­tion and build-up of certain chemicals in your body. This chemical build-up is what causes symptoms such as severe abdominal pain. If you have an AIP attack, your doctor will determine the best course of treatment. First, your doctor will consider an appropriate trial of carbohydrates. This trial may be 400 grams of glucose (a sugar) for 1 to 2 days. If your doctor suspects or confirms this therapy is not working, he or she may recommend you start PANHEMATIN.

You should know that AIP attacks may progress to the point where they cause irreversible nerve damage. The goal of treatment with PANHEMATIN is to help prevent an attack from reaching the criti­cal stage of nerve breakdown. But PANHEMATIN cannot repair nerve damage that has already occurred.

How do I take PANHEMATIN?

PANHEMATIN is given through an IV needle into a large arm vein or a central line. Small arm veins should not be used since vein inflammation has been reported. Treatment lasts for 3-14 days, depending on how your symptoms improve. Your doctor will continually monitor your condition while you are taking PANHEMATIN. Depending on your signs and symptoms, you may need different types of treatment in addition to PANHEMATIN.

Patient Stories

Because AIP is so rare, you may not know anyone who has been diagnosed with this disease. Here are stories from real people who are living with AIP.

BEVERLY

For most of her adult life, Beverly lived through unexplained and sometimes severe attacks of abdominal pain. After many years and visits to nearly 30 specialists, she finally received a correct diagnosis of AIP. A songwriter and performer, Beverly uses music to help manage her AIP and to connect with other people who have rare diseases.

Read how Beverly found the strength to start over and is encouraging others to do so as well.

READ MORE

TRACY

Tracy and her family are very familiar with the effects of AIP. Knowledge of symptoms and family history were key to getting Tracy’s diagnosis.

Watch the video to learn how she successfully manages her AIP and makes health decisions with support from her family and doctors.

WATCH THE VIDEO

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Some of the characters depicted are actors and not healthcare professionals or actual patients.