Patient Support

Living with acute intermittent porphyria (AIP) can be challenging, but there is help available. Check out the resources below.


Is there a PANHEMATIN Patient Support Program?

Recordati Rare Diseases has a free support program for people living with AIP as well as caregivers, doctors and medical staff, and others who have questions about PANHEMATIN insurance coverage and related issues. Contact the Recordati Rare Diseases Patient Support Program hotline for help with:

  • Insurance verification – Help with confirming that your insurance company will cover PANHEMATIN, and help with understanding your insurance benefits.
  • Insurance counseling – Help you to explore other insurance options if you are uninsured or underinsured for PANHEMATIN.
  • Additional approvals for coverage – Help working with your doctor’s office and insurance company if additional approvals are needed.
  • Insurance company education – Help with educating insurers about PANHEMATIN to speed up decisions about coverage and payment.
  • Copay assistance program – Get help with your copay if you're an eligible patient who receives PANHEMATIN infusions in an outpatient care setting.
  • Patient Assistance Program (PAP) – Get assistance with accessing medications if you don’t have insurance or are underinsured, if eligible.
  • Additional referrals – Help with referrals to outside assistance sources when available.

Contact The Recordati Rare Diseases Patient Support Program

(Monday-Friday between 9:00 a.m. and 5:00 p.m. ET):
Hotline: 866-209-7604 (toll-free)
Fax: 866-209-7599

Online Resources

For more information about AIP, check out these educational and support resources.

The APF educates people with porphyrias, their families, and doctors; raises funds for research; and promotes better patient care.


GARD provides information for individuals with genetic and rare diseases, their families, and others.


NORD is a group of health organizations dedicated to helping people with rare “orphan” diseases.


The Porphyrias Consortium, part of the Rare Diseases Clinical Research Network, helps patients, families, and doctors through joint efforts to improve the diagnosis, treatment, and prevention of illness and disability caused by the porphyrias.