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Living with acute intermittent porphyria (AIP) can be challenging, but there is help available. Check out the resources below.
Is there a PANHEMATIN Patient Support Program?
Recordati Rare Diseases has a free support program for people living with AIP. The support program can also help caregivers, doctors and medical staff, and others who have questions about PANHEMATIN insurance coverage and related issues. Contact the Recordati Rare Diseases Patient Support Program hotline for:
Contact The Recordati Rare Diseases Patient Support Program
(Monday-Friday between 9:00 a.m. and 5:00 p.m. ET):
Hotline: 866-209-7604 (toll-free)
For more information about AIP, check out these educational and support resources.
The APF educates people with porphyrias, their families, and doctors; raises funds for research; and promotes better patient care.VISIT SITE
The Porphyrias Consortium, part of the Rare Diseases Clinical Research Network, helps patients, families, and doctors through joint efforts to improve the diagnosis, treatment, and prevention of illness and disability caused by the porphyrias.VISIT SITE