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Living with acute intermittent porphyria (AIP) can be challenging, but there is help available. Check out the resources below.
The PAL provides one-on-one support for patients and their caregivers that may include:
- Providing education about acute intermittent porphyria (AIP) and how it can impact the body
- Answering questions you might have about Panhematin, such as questions about dosing or how Panhematin works
- Helping you if issues arise accessing Panhematin
- Helping you to connect with resources regarding acute intermittent porphyria or AIP
- Services are also available in Spanish, if preferred.
These services are provided at no additional cost to you by Recordati Rare Diseases (the maker of Panhematin) to help you manage the Panhematin therapy. For medical care, please contact your doctor or nearest urgent care provider.
To Get Started, Complete The Program Enrollment Opt-in Form:COMPLETE THE OPT-IN FORM
The PAL will contact you upon receipt of the opt-in form.
Additional Reimbursement And Financial Support Programs
Recordati Rare Diseases has a free support program that can help patients, caregivers, doctors and medical staff, and others who have questions about PANHEMATIN insurance coverage and related issues. Contact the Recordati Rare Diseases Patient Support Program hotline for:
Contact The Recordati Rare Diseases Patient Support Program
(Monday-Friday between 9:00 a.m. and 5:00 p.m. ET):
Hotline: 866-209-7604 (toll-free)
For more information about AIP, check out these educational and support resources.
The APF educates people with porphyrias, their families, and doctors; raises funds for research; and promotes better patient care.VISIT SITE
The Porphyrias Consortium, part of the Rare Diseases Clinical Research Network, helps patients, families, and doctors through joint efforts to improve the diagnosis, treatment, and prevention of illness and disability caused by the porphyrias.VISIT SITE