Patient Support

Living with acute intermittent porphyria (AIP) can be challenging, but there is help available. Check out the resources below.

Patient Advocacy Liason For Individuals Taking Panhematin

Patient Advocacy Liaison (PAL) For Individuals Taking Panhematin

The PAL provides one-on-one support for patients and their caregivers that may include:

  • Providing education about acute intermittent porphyria (AIP) and how it can impact the body
  • Answering questions you might have about Panhematin, such as questions about dosing or how Panhematin works
  • Helping you if issues arise accessing Panhematin
  • Helping you to connect with resources regarding acute intermittent porphyria or AIP
  • Services are also available in Spanish, if preferred.

These services are provided at no additional cost to you by Recordati Rare Diseases (the maker of Panhematin) to help you manage the Panhematin therapy. For medical care, please contact your doctor or nearest urgent care provider.

To Get Started, Complete The Program Enrollment Opt-in Form:


The PAL will contact you upon receipt of the opt-in form.

Additional Reimbursement And Financial Support Programs

Recordati Rare Diseases has a free support program that can help patients, caregivers, doctors and medical staff, and others who have questions about PANHEMATIN insurance coverage and related issues. Contact the Recordati Rare Diseases Patient Support Program hotline for:

Contact The Recordati Rare Diseases Patient Support Program

(Monday-Friday between 9:00 a.m. and 5:00 p.m. ET):
Hotline: 866-209-7604 (toll-free)
Fax: 866-209-7599

Access and Reimbursement Support

  • Insurance verification – Help with confirming that your insurance company will cover PANHEMATIN, and help with understanding your insurance benefits.
  • Insurance counseling – Help with exploring other insurance options if you are uninsured or underinsured for PANHEMATIN.
  • Additional approvals for coverage – Help work with your doctor’s office and insurance company if additional approvals are needed.
  • Insurance company education – Help with educating insurers about PANHEMATIN to speed up decisions about coverage and payment.

Financial Assistance

  • Copay assistance program – Help with your copay if you're an eligible patient who receives PANHEMATIN infusions in an outpatient care setting.
  • Patient Assistance Program (PAP) – Assistance with accessing PANHEMATIN if you are an eligible patient who doesn't have insurance or are underinsured.
  • Additional referrals – Help with referrals to outside assistance sources when available.

Online Resources

For more information about AIP, check out these educational and support resources.

The APF educates people with porphyrias, their families, and doctors; raises funds for research; and promotes better patient care.


The Porphyrias Consortium, part of the Rare Diseases Clinical Research Network, helps patients, families, and doctors through joint efforts to improve the diagnosis, treatment, and prevention of illness and disability caused by the porphyrias.


NORD is a group of health organizations dedicated to helping people with rare “orphan” diseases.


GARD provides information for individuals with genetic and rare diseases, their families, and others.


Important Safety Information