Patient Support

Living with acute intermittent porphyria (AIP) can be challenging, but there is help available. Check out the resources below.

Paying for PANHEMATIN

Is there a PANHEMATIN Patient Support Program?

Recordati Rare Diseases has a free support program for people living with AIP as well as caregivers, doctors and medical staff, and others who have questions about PANHEMATIN insurance coverage and related issues. Contact the Recordati Rare Diseases Patient Support Program hotline for help with:

  • Insurance verification – Help with confirming that your insurance company will cover PANHEMATIN, and help with understanding your insurance benefits.
  • Insurance counseling – Help you to explore other insurance options if you are uninsured or underinsured for PANHEMATIN.
  • Additional approvals for coverage – Help working with your doctor’s office and insurance company if additional approvals are needed.
  • Insurance company education – Help with educating insurers about PANHEMATIN to speed up decisions about coverage and payment.
  • Copay assistance program – Get help with your copay if you're an eligible patient who receives PANHEMATIN infusions in an outpatient care setting.
  • Patient Assistance Program (PAP) – Get assistance with accessing medications if you don’t have insurance or are underinsured, if eligible.
  • Additional referrals – Help with referrals to outside assistance sources when available.

Contact The Recordati Rare Diseases Patient Support Program (Monday-Friday between 9:00 a.m. and 5:00 p.m. ET):
Hotline: 866-209-7604 (toll-free)
Fax: 866-209-7599

How can I explain AIP to my family?

Because AIP is a genetic disorder, your diagnosis means that your blood relatives have a much greater chance of having it. Use this guide to talk to family members about AIP.

Discussing AIP with Your Family

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How can I talk to my doctor about AIP?

If you have symptoms of AIP, such as severe abdominal pain, it’s important to talk to your doctor right away.

Could It Be AIP?

Download our checklist to
help prepare for your visit

Online Resources

For more information about AIP, check out these educational and support resources.

The APF educates people with porphyrias, their families, and doctors; raises funds for research; and promotes better patient care.

VISIT SITE

GARD provides information for individuals with genetic and rare diseases, their families, and others.

VISIT SITE

NORD is a group of health organizations dedicated to helping people with rare “orphan” diseases.

VISIT SITE

The Porphyrias Consortium, part of the Rare Diseases Clinical Research Network, helps patients, families, and doctors through joint efforts to improve the diagnosis, treatment, and prevention of illness and disability caused by the porphyrias.

VISIT SITE