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Living with acute intermittent porphyria (AIP) can be challenging, but there is help available. Check out the resources below.
Personalized education and support for women with AIP receiving treatment with PANHEMATIN
These services are provided at no additional cost to you by Recordati Rare Diseases (the maker of PANHEMATIN) to help you manage the PANHEMATIN therapy. For medical care, please contact your doctor or nearest urgent care provider.
To Get Started, Complete The Program Enrollment Opt-in Form:COMPLETE THE OPT-IN FORM
The PAL will contact you upon receipt of the opt-in form.
Watch these videos to learn more about the PANHEMATIN PAL program:
Introducing the Patient Advocacy Liaison program for patients receiving treatment with PANHEMATIN
Meet Helga, a Patient Advocacy Liaison for patients receiving treatment with PANHEMATIN
How the Patient Advocacy Liaison program for patients receiving treatment with PANHEMATIN has helped individuals living with AIP
Additional Reimbursement and Financial Support Programs
Recordati Rare Diseases has a free support program for eligible people living with AIP. The support program can also help caregivers, doctors and medical staff, and others who have questions about PANHEMATIN insurance coverage and related issues. Contact the Recordati Rare Diseases Patient Support Program hotline for:
Contact The Recordati Rare Diseases Patient Support Program
Monday-Friday from 9 AM to 5 PM ET
Hotline: 866-209-7604 (toll-free)
For more information about AIP, check out these educational and support resources.
The APF educates people with porphyrias, their families, and doctors; raises funds for research; and promotes better patient care.VISIT SITE
NORD is a group of health organizations dedicated to helping people with rare “orphan” diseases.VISIT SITE
The Porphyrias Consortium, part of the Rare Diseases Clinical Research Network, helps patients, families, and doctors through joint efforts to improve the diagnosis, treatment, and prevention of illness and disability caused by the porphyrias.VISIT SITE
The UPA is committed to improving the quality of life of people with porphyria and focuses on advancing disease awareness, research, and therapies.VISIT SITE