Contact the Recordati Rare Diseases
Patient Support Program for Assistance
Monday-Friday between 9:00 a.m. and 5:00 p.m. ET:
Phone: 866-209-7604 Fax: 866-209-7599
Contact a Recordati Rare
Diseases Representative
These resources may help your patients get access to the medication and information they need.
The Recordati Rare Diseases PANHEMATIN Support Program is available to assist you and your patients with:
Phone: 866-209-7604 Fax: 866-209-7599
Discussing AIP with Your Family is a printable guide that can give your patients information they need to talk about AIP with family members.
Whether your patients are newly diagnosed or have been living with AIP for some time, they are likely to have many questions and concerns. The resources below are appropriate for your practice as well as your patients.
The American Porphyria Foundation educates physicians and the general public, raises funds for research, and advocates for better policy and patient care.
VISIT SITEThe Porphyrias Consortium, part of the Rare Diseases Clinical Research Network founded by the NIH, benefits patients and physicians by enabling a large-scale collaborative effort to develop new strategies and methods for diagnosis, treatment, and prevention of illness and disability resulting from these rare disorders.
VISIT SITEThe National Organization for Rare Diseases (NORD) is a federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases.
VISIT SITEPANHEMATIN® is a hemin for injection indicated for the amelioration of recurrent attacks of acute intermittent porphyria temporally related to the menstrual cycle in susceptible women, after initial carbohydrate therapy is known or suspected to be inadequate.
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