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Contact a Recordati Rare
Diseases Representative

For U.S. Healthcare Professionals For U.S. Patients

Resources for Patients

Patient Liaison (PL) Program


The Patient Liaison* will call enrolled patients to:

1Provide education and answer questions about AIP and PANHEMATIN

2Help patients if issues arise accessing PANHEMATIN

3Connect patients with other resources regarding AIP

Calls are available in English and Spanish. Translation services can be utilized for other languages.

To get started, your patients can complete the program enrollment opt-in form:

COMPLETE THE OPT-IN FORM

To learn more about the PL program, watch these videos

Video 1:Introducing the Patient Liaison program for patients using PANHEMATIN
Video 2:Meet Helga, a Patient Liaison for patients using PANHEMATIN
Video 3:How the PANHEMATIN Patient Liaison program has helped individuals and families

Resources for your patients to help them prepare for AIP attacks

Living with AIP can be challenging, but having a plan in place will allow your patients to focus on getting the care they need when they have an AIP attack.

PANHEMATIN Patient Support Program

Contact the Recordati Rare Diseases Patient Support Program for Assistance

Monday-Friday between 9:00 AM and 5:00 PM ET

Phone: 866-209-7604; Fax: 866-209-7599

Access and Reimbursement Support

BENEFITS INVESTIGATION

— Determining whether the patient's insurance will cover PANHEMATIN


PRIOR AUTHORIZATIONS/APPEALS

— Facilitating the prior authorization process by determining requirements, coordinating paperwork, and following up on the final decision


REIMBURSEMENT SUPPORT

— Assisting with inquiries regarding coverage and reimbursement as they relate to PANHEMATIN


INSURANCE COUNSELING

— Helping your patients explore other insurance options if they are uninsured or do not have favorable coverage for PANHEMATIN


PATIENT ASSISTANCE PROGRAM (PAP)

— Appealing denied or underpaid claims for PANHEMATIN


Financial Assistance

COPAY ASSISTANCE

— Assisting eligible patients who receive PANHEMATIN infusions in outpatient settings with their insurance copays

PATIENT ASSISTANCE PROGRAM (PAP)

— Assisting qualified uninsured and underinsured patients gain access to PANHEMATIN

Advocacy Support

The American Porphyria Foundation educates physicians and the general public, raises funds for research, and advocates for better policy and patient care.

VISIT SITE

The Porphyrias Consortium, part of the Rare Diseases Clinical Research Network founded by the NIH, benefits patients and physicians by enabling a large-scale collaborative effort to develop new strategies and methods for diagnosis, treatment, and prevention of illness and disability resulting from these rare disorders.

VISIT SITE

The National Organization for Rare Diseases (NORD) is a federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases.

VISIT SITE

The United Porphyrias Association is committed to improving the quality of life of people with porphyria and focuses on advancing disease awareness, research, and therapies.

VISIT SITE
About PANHEMATIN Review Efficacy and Safety Data
Resources for Patients Review Signs and Symptoms

Important Safety Information