Talking to Others about AIP

Everyone’s AIP journey is unique – from developing symptoms, to getting a diagnosis, and to living with AIP. One thing is almost certain: at some point, you will need to talk to others about AIP – your family, your friends, and your doctor. The resources on this page can help you explain what AIP is, share your story with others, and keep track of symptoms.

Not sure how to talk to your family and friends about AIP?

Your family and friends can better support you in dealing with the symptoms of AIP if they understand AIP and how it affects you. The family discussion guide explains what AIP is, what the common symptoms are, and how the condition is diagnosed and treated.

Download the AIP Discussion Guide

Would you like to share your AIP journey with others but don't know where to start?

Because AIP is hereditary, it might be valuable to share your story with your female relatives. But it might be hard to find the words to describe your journey to diagnosis -- and how you manage AIP every single day. To help you write your story, two “story builders” are available. One story builder helps you share your journey to diagnosis and the other helps you share how you live with AIP. You can download these files and save them to your computer. You can then use the files to write down your story in your own time.

Download the “Sharing Your Journey to Diagnosis” story builder Download the “Sharing Your Story About Living with AIP” story builder

Suspect AIP? Track your symptoms here.

You may suspect you have AIP. This tool with help you identify and track your symptoms so you can talk to your doctor about them – and about possibly getting tested for AIP.

Download the AIP Symptom Checklist